MCS patients take something to get over their symptoms?
A. MCS is not an allergy that can be alleviated by antihistamines
or eliminated by neutralization treatment.
DON’T tell the MCS patient to "take something".
There is nothing to take and this trivialization of his medical problem only
causes him further frustration and anxiety. DO ask him what, if
any, antidote will help in an acute reaction and if you can get it for him.
Q. Why don’t doctors treat
A. Some do - these are called Clinical Ecologists or Orthomolecular
Physicians. They can be found through the American Academy of Environmental
Medicine. However, since there is no cure for MCS, avoidance and elimination
of the offending chemical substances are still the primary treatment.
DON’T tell the MCS/EI that you heard that
MCS is "all in his head" and that he should see a psychiatrist.
Finding a qualified doctor and finding the funds to pay for treatment are
difficult enough for the MCS patient. He does not need any further lack of
support than he already encounters from the allopathic medical community
and the general public. A blanket statement that a problem is not real usually
stems from ignorance. DO offer the MCS patient help in locating
a qualified doctor and in getting to and from an appointment.
Q. Why can’t MCS/EI’s receive unemployment
benefits, worker’s compensation, or other income from their former
employers if they were disabled on the job?
A. No employer wants to pay such benefits and since an
MCS diagnosis is almost impossible to obtain from the allopathic medical
community (which includes the occupational physicians employed by the insurance
companies which are hired by the employers), MCS patients disabled on the
job are forced simply to resign and never work again. Qualifying for public
assistance is also difficult since the MCS/EI is seldom able to stand in
the required lines with scented people and in a waiting room that might
be carpeted or pesticided.
DON’T suggest that the MCS/EI "get a job". If he
were able to work, he would. DO offer any helpful information you
find on agencies or other support for the disabled.
Q. Why don’t MCS/EI’s
room together or form MCS communities to alleviate their money problems?
A. The very nature of the illness precludes cohabitation
for MCS patients. There are no 2 people who can physically tolerate the
same chemicals at the same times – therefore separate quarters are
necessary – separate entrances, separate air/heating supplies, separate
cosmetics and cleaners, separate clothing and bedding materials, separate
books/papers/office supplies if those are tolerated at all. Communities
have been formed and later abandoned because even the air drifting from
one person’s window to the next made people ill.
DON’T criticize the MCS/EI for spending all or most of his
income on housing. His home (if he is lucky) might be the only tolerable
location for him. DO ask if the MCS/EI needs any household items
and offer to keep an eye out for older, outgassed items or ones made of inert
Q. What if I have an appointment with my MCS friend
but inadvertently use scented products or chemicals beforehand?
A. If you are willing and have the time to remove the
chemicals, do so. Otherwise, advise the person in advance of the appointment
so that you both can make other arrangements.
DON’T try to sneak scented products or other chemicals into
your MCS friend’s environment! You can do unimaginable damage. Remember,
this illness is life-threatening on a daily basis. DO try to make
other arrangements for your MCS friend if he was depending on you for transportation,
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